Vascular Compression Alliance

Turning experience into advocacy.

The Vascular Compression Alliance is a nonprofit focused on vascular compression syndromes and the patients and families navigating them. Its mission includes awareness, research, advocacy, patient resources and support for families traveling for specialized care.

The work grew out of our family’s experience navigating Sophia’s medical journey and seeing how difficult it can be for patients to find knowledgeable care and reliable information.

We will continue sharing VCA updates and ways to support its work here as the organization grows.